Resources for Parents

Below is a list of resources from CHKD, as well as additional online resources for parents of children with special needs.

Transition Resources

• Transition Checklist for Parents
• Transition Resources
• Health Insurance Marketplace Affordable Care Act
• Tips for Parents when Child Turns 18
• Tips for Military Parents when Child Turns 18
• Supplemental Security Income - What Happens to my SSI When I Turn 18?

Guardianship/Alternatives to Guardianship

• DLCV: Supported Decision Making
• SupportedDecisionMaking.org
• Supported Decision Making as an Alternative to Guardianship
• Decision Making Glossary of Terms

Emergency Preparedness Resources

• Emergency Preparedness for Families of Children with Special Needs
• Video: Emergency Preparedness for Families of Children with Special Needs

Disease Specific Organizations

• Cystic Fibrosis Foundation
• Spina Bifida Association
• United Cerebral Palsy Foundation
• Chromosome Disorder Outreach
• American Cancer Society
• American Diabetes Association
• American Heart Association
• American Lung Association

Useful Links

• Virginia Dept. of Health
• Virginia Department of Rehabilitative Services
• Virginia Department of Social Services
• Family Access to Medical Insurance Security (FAMIS)
• Disability.gov
• Medline Plus
• Virginia 211

Additional Resources for Parents

• Dental List
• KidsPriorityOne
• Make-A-Wish Foundation
• Safe Kids Coalition
• SEEK - Depression Info for Parents
• SEEK - Food Insecurity Info for Parents
• SEEK - Domestic Violence Info for Parents
• SEEK - Drug and Alcohol Abuse Info for Parents
• SEEK - Stress and Kids Info for Parents
• SEEK - Smoke Alarm Safety for Parents